On the way home from the hospital
Overall, he is doing really well and doesn't seem to be in any pain. He has had a slight fever, which is normal post-surgery, but no need to worry unless his temp goes up higher. He has also struggled with some difficulty sleeping and clinginess, but as long as he's on one of our laps, he's a happy boy. Noah has been a lot more cheerful than we expected and blessed us with lots of laughs, smiles, and all around silliness.
For two weeks he was not allowed to lay on his stomach to protect the healing incision on his chest. Needless to say, his body is a bit weaker than before, so we are working on rebuilding those arm, leg, and core muscles and getting him crawling more regularly again.
Want to hear more about how crazy kind and gracious God is?
We saw Noah's cardiologist for a follow-up appointment on Friday. And once again, his cardiologist was amazed at his progress! Remember how we asked you to continue to pray for the right ventricle in his heart to work more efficiently? Well, it is working more efficiently now! The issue was that that ventricle was under so much pressure for years from his pulmonary artery being banded. His right ventricle was working overtime for five years. But Noah's echo-cardiogram on Friday showed that the pressure in that ventricle is almost half of what it was when he was in the hospital. I'm no cardiologist and don't know what unit of measurement it is, but his cardiologist said when he was in the hospital the pressure in the right ventricle was 100 and now it is already down to 55. That's great news and another answer to prayer!
Here is some other good news:
- There is no more swelling in Noah's body from the surgery
- His oxygen levels are normal
- His blood pressure continues to stay at a good level
- He does not need two of his heart medications anymore. No more waking him up in the middle of nap time each day! No more planning meals around medicine! Woohoo!
- The time in the hospital actually helped Noah's bond with us grow, rather than hindering it. We'll share more about this soon :)
- Nora did well through all the transitions. She had a rough first two days home (which is her normal pattern), but is back to her normal happy, goofy,...feisty...self. We have some long overdue, encouraging updates to share about her progress soon.
Thank you again for all of your support and prayers on our family's behalf! Please continue to pray for complete healing in Noah's heart. It may take years for his heart to work out the kinks...there is actually a kink in his pulmonary artery from being banded for so long (think like a kink in a hose), so it will take a little while for it to expand even more and get the pressure in that right ventricle down completely. We are also attempting to wean him off of his diuretic medicine (at the direction of his cardiologist), so we would appreciate prayers. One prayer is that he can successfully come off that med. The other prayer is for wisdom to see the signs if he cannot come off of it. Basically if his body needs that medicine and we take him off of it, fluid will build up around his heart and he will experience heart failure. That is why we need the wisdom to be able to notice if his body is retaining fluid or not once we wean him off of it. Thank you for praying!
Lastly, please praise the Lord with us. He is good. Always. We are still thrilled and amazed and so so thankful that we get to keep our little guy! What a gift!